Add prefix [icd11.foundation] #1331
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sierra-moxon
added
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Thanks @sierra-moxon. Can you help describe better how this is different from the existing ICD11 prefix? Is the difference just that it's a new provider? The example you gave https://icd.who.int/browse/2024-01/foundation/en#1048673005 seems to also work with existing https://bioregistry.io/icd11:1048673005 Interestingly, I think that when I added the ICD11 to Bioregistry (immediately when it came out), they hadn't started displaying the "codes" there yet. |
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Some things here are wrong, let me provide context and feedback later tonight. |
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Important: URI format string should be Over time I have changed my mind many times, here is my final position on the prefix matter of ICD in general, whether it is ICD10, 11 or anything else. ICD10 and ICD11 are highly ambiguous prefixes. Yes, you may be lucky and guess what they are referring to (ICD10 for example more often than not refers to the English language CM flavour in the US, and ICD11, with a bit of luck, refers to the WHO Morbidity and Mortality Statistics (MMS) linearlisation of the ICD11. The ICD11 foundation is a foundational ontology with entirely different identifier schemes than icd11.mms which you would typically find in raw data. While the ICD11.MMS linearisation is thus the user facing side of things (one of the multiple different planned linearisation, albeit the most important), so the thing you would find in EHR records, icd11.foundation is what you would typically find in ETL / alignment systems, because that is what refers to the ontology underlying the linearisations. If you like to consult with one of the world leading authorities on the matter see if you can get @cgchute confirm what I am describing here 📦 Thanks both! |
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I think I concur. WHO publishes it’s own URIs, and in my experience it is always best to go with URI’s published by the source if we have confidence they are not ephemeral. E.g. Foundation URI : http://id.who.int/icd/entity/160886685
Chris
Co-chair, Medical Scientific Advisory Committee for the WHO Family of International Classifications
Christopher G Chute, MD DrPH
Bloomberg Distinguished Professor of Health Informatics
Professor of Medicine, Public Health, and Nursing
Chief Research Information Officer, Johns Hopkins Medicine
Deputy Director, Institute for Clinical and Translational Research
Head, Section of Biomedical Informatics and Data Science
Johns Hopkins University | Division of General Internal Medicine
2024 E Monument St | Suite 1-200 | Baltimore, MD 21287
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Sent: Tuesday, December 17, 2024 3:03 AM
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Subject: Re: [biopragmatics/bioregistry] Add prefix [icd11.foundation] (Issue #1331)
Important: URI format string should be http://id.who.int/icd/entity/, not this http://purl.obolibrary.org/obo/mondo/sources/icd11foundation/. The name should be International Classification of Diseases 11th Revision, Foundation. The description should be adjusted to something along the lines of the below.
…________________________________
Over time I have changed my mind many times, here is my final position on the prefix matter of ICD in general, whether it is ICD10, 11 or anything else.
ICD10 and ICD11 are highly ambiguous prefixes. Yes, you may be lucky and guess what they are referring to (ICD10 for example more often than not refers to the English language CM flavour in the US, and ICD11, with a bit of luck, refers to the WHO Morbidity and Mortality Statistics (MMS)<https://icd.who.int/ct/icd11_mms/en/release> linearlisation of the ICD11.
The ICD11 foundation is a foundational ontology with entirely different identifier schemes than icd11.mms which you would typically find in raw data. While the ICD11.MMS linearisation is thus the user facing side of things (one of the multiple different planned linearisation, albeit the most important), so the thing you would find in EHR records, icd11.foundation is what you would typically find in ETL / alignment systems, because that is what refers to the ontology underlying the linearisations.
If you like to consult with one of the world leading authorities on the matter see if you can get @cgchute<https://github.com/cgchute> confirm what I am describing here 📦
Thanks both!
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@sierra-moxon I think you will need to updated your original comment with the changes suggested here, and the PR, to indicate your consent :) |
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I was hoping I could trigger the PR action again by closing and opening.. cc @cthoyt |
Prefix
icd11.foundation
Name
International Classification of Diseases 11th Revision, Foundation
Homepage
https://icd.who.int/en
Source Code Repository
No response
Description
ICD11 foundation is the ontology underlying the ICD 11 codes.
Separate from a linerization, the single parent hierarchy from ICD 10, where there are chapters (eg Q24), sections (eg Q24.11-23), and actual codes (e.g Q24.23), the icd11.foundation is more like an ontology.
License
No response
Publications
No response
Example Local Unique Identifier
1048673005
Regular Expression Pattern for Local Unique Identifier
^\d+$
URI Format String
http://id.who.int/icd/entity/$1
Wikidata Property
No response
Contributor Name
Sierra Moxon
Contributor GitHub
sierra-moxon
Contributor ORCiD
0000-0002-8719-7760
Contributor Email
[email protected]
Contact Name
No response
Contact ORCiD
No response
Contact GitHub
No response
Contact Email
No response
Additional Comments
prefix: icd11.foundation
expansion: http://purl.obolibrary.org/obo/mondo/sources/icd11foundation/
I'm unsure if this should replace the current
icd11prefix in Bioregistry or exist in addition to that prefix. But I do know that I needicd11.foundationsomewhere in the registry to support: biolink/biolink-model#1531resolvable URL: https://icd.who.int/browse/2024-01/foundation/en#1048673005
alternative URI: http://id.who.int/icd/entity/1048673005
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